Rest – Required

Last night I took a nice hot bath, soothed my aching muscles with the heat after a busy weekend getting ready for the first day of school.  It’s something I don’t do very often.
(I forget why?)  I threw in some lovely aroma therapy oils, kept the room dark and just relaxed.  That is until a happy little 2 year old skipped into my room and decided to hop in with me (oh yeah, that’s why).  Not so relaxing when you end up with grapes floating around in the water and get splashed in the face.  I wouldn’t have changed a thing though, I know these moments will soon be memories.

 

I must admit, I have always had to take extra rest, even before I developed fibro.  I’m an introvert and it always has made me very tired to go out and do anything, including being with other people (yes even people I love).  I need to have some peace and quiet and alone time to feel restored.  Having this syndrome has made me much more aware of this and from what I hear from others, it is necessary for us to recuperate after even simple everyday activities like grocery shopping or going to a lunch meeting.  Problems arise when we don’t take this time to rest.  Pain, more fatigue and brain fog are quick to creep up on us when we push too far.  The longer the activity, or more energy exerted, the more rest we need.

There are different types of rest described for us in the Scriptures.

Sabbath rest

Future rest in God

Rest/peace for the soul

We as humans need them all!  But I’d like to focus on a few verses that speak about rest/peace for our souls.  These are the verses we can cling to when we know we need rest and can be encouraged that God will provide it for us!

Jesus speaks right to us in Matthew, “Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls.”  Matthew 11:28-29.

He promises rest and peace from anxiety, “Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.” Philippians 4:6-7.

Sometimes we don’t even know we need rest and God provides opportunities for us.  (Oh how He loves us!)  “The Lord is my shepherd, I shall not be in want.  He makes me lie down in green pastures, he leads me beside quiet waters, he restores my soul.” 

Psalm 23:1-3.

I love love love Psalm 23 and encourage you to read and study the entire Psalm and find your rest in God today!

“Find rest, O my soul, in God alone; my hope comes from him.”

Psalm 62:5

New Habit – Supplements

I hate pills.  Always have.  I’m not one to take them unless it’s absolutely necessary.  Just the idea usually turns my weak stomach.  Let’s face it though; we are not getting the nutrients we need from our food.  People with fibromyalgia are often deficient in certain vitamins and minerals, and may need some help getting our bodies back to the right levels.  It IS necessary.  My Dr. recommended a few for me, and like I mentioned in a previous post, Figuring out Fibromyalgia, one of the things suggested was to take a few supplements.  So I decided to give it a try and see if it made any difference for me.

I began to do a little research on the supplements I should be taking and quickly became overwhelmed.  There are so many to choose from, so many different brands, dosages, different kind of pills, powders & drinks.  I had to walk away from the computer in frustration many times.  I had no idea what the best way to take each one was, the best time of day.  BLAH.  Then one day I was out shopping at Costco & just decided to go get what I needed there, give it a try and then change later if I needed to.  I stood there in the isle with a very unhappy 2 year old in the cart (he hates shopping) and read through the supplement chapter of Figuring out Fibromyalgia on my Kindle.

1. Triple Omega

     2. Super B Complex 

        3. Vitamin D3

 

Got it!  Now I was committed.  Those Costco size supplements are no joke.  It was around $50 for all 3.  I'm getting close to running out of the Triple Omega now, but the other 2, I still have plenty!  And it's been months since I bought them.  Little tip, keep them in your fridge!  (They keep longer & no fish smell from the omega)

I devoted myself to taking them every day.  And for the most part I have!  I forget some mornings, and there was a month that I stopped as a little test to see if they really were helping, and about a week when I was pretty sick.  Other than that, I have been faithful since January 2012.

Another thing I wanted to try was herbs.  My sister is studying to be an herbalist.  She took some time and knowing what was going on with me, made up a few different things to help.

For me, just doing this small thing with just these few supplements & herbs has made a HUGE difference in my life.  It took about 2 weeks to really kick in.  Taking the Omega Blend has helped tremendously with my brain fog.  I would say I have about an 80% improvement.  The B complex has given me a little bit of my life back.  Instead of heading downhill at around 4pm every day, I’m usually just fine until bed time.  Having more energy is such a blessing.  I would rate it at about 50% improvement (and getting better).  I don’t feel any difference with or without the Vitamin D3, but from what I’ve read, this is worth taking.  And it’s just a little easy pill.  The herbs that I take have helped me with a few other health issues, not necessarily related to fibro.  The more I read & learn, there are probably some more supplements that would be helpful for me.  I have just started taking MagnesiumGlycinate.  I’ll let you know how it goes!

I urge you to talk with your Dr., get some testing done to see if there are deficiencies, and do a little reading for yourself.  It is worth it!  I am VERY pleased with my experience & will continue to take my pills every day.  Hey, it forces me to eat a little breakfast every morning so I can stomach taking the pills.  There’s another good habit.

Job - Help for the Hurting

“so I have been allotted months of futility,

    and nights of misery have been assigned to me.

When I lie down I think, ‘How long before I get up?’

    The night drags on, and I toss and turn until dawn.”  Job 7:3-4

“And now my life ebbs away;

    days of suffering grip me.

Night pierces my bones;

    my gnawing pains never rest.”  Job 30:16-17

Sound familiar?  Researching the history of fibromyalgia you will often find references to Job possibly being the first recorded sufferer.  I hadn’t heard anything about this before I began investigating this syndrome, and I have studied the book of Job a few times.

Most commentators agree that Job is the oldest book in the Bible, possibly written soon after the flood of Noah, many years before Moses penned the Torah (first 5 books of the Bible).  Job was a righteous and wealthy man.  Satan approached God with a challenge, that when all good things were taken away from him, Job would blame God and turn from Him.  Satan is given approval to prove his theory and all of Job’s wealth is taken away, his ten adult children are killed and he is afflicted with illness.  Why does God allow us to suffer?  Three of Job’s friends show up to try and make sense of what was happening to this Godly man.  Job never wavers in his faith and worship of God.  Then, the Creator and Sustainer of the universe speaks to Job about who He is.  A Living, Loving, Personal God, active in all facets of His creation.  Job is found to have passed this test and God blesses him, giving him twice as much as he had before.  More wealth, more children, and although the text doesn’t mention his health, the fact that people once again were not afraid to be around him, and the fact that he lived happily for 140 years after these events, leads me to believe he was healed.

As I read more of Job’s own description of his afflictions and looked back to the beginning of the story,   “So Satan went out from the presence of the Lord and afflicted Job with painful sores from the soles of his feet to the crown of his head.”  Job 2:7, I can’t help but doubt that fibromyalgia is what was ailing him.  In my opinion whatever it was, was horrible and included open sores (boils) that would explain his physical torture.  However, even if Job didn’t suffer from fibromyalgia, those of us that live with pain can turn to this book for comfort, answers and hope.

“There is great news to those who have lost possessions, for those who have lost position and for those who have lost health.  God is near, God is in Love with you and God is in control.  It is a huge challenge, but the truth is that the God who directs each and every lightning bolt is in control of the situation.  Nothing that has happened in a life, as tragic as it is, is a surprise to God, nor was it beyond His capability to stop it.  The good news is that God is so capable that He can not only manage, but also direct the life of each individual in such a way that measured in the eternal scheme of things, a perfect plan unfolds that is best for the person and brings glory to God.  The life of the hurting is in the powerful and loving hand of the Creator and has His laser focus and undivided attention.” (193-194) God’s Science Quiz, Dr. Gary Sutliff.

I invite you to study The Book of Job for yourself and pray that you find comfort in it as I have.

For further study into the science in Job, you can pick up my Dad’s book on the subject!

God's Science Quiz.  

And watch this video by Chuck Missler - 
God's Science Quiz to Job.

Stormy days – Am I a Human Barometer?

Something I have read about, and heard from others, is that weather really affects their fibromyalgia.  Up until recently I’ve been pretty confused about my symptoms and what is going on with me, but it seemed like the weather really didn’t bother me much.  I live in AZ where it is very dry most of the year.  But every summer, mid-July, we get hit with monsoons.  The humidity literally goes from 0 – 60 in a matter of days.  It’s lovely to have summer storms in the desert.  Pouring rain, lighting shows and the most beautiful sunsets you’ve ever seen!

 I’ve been feeling pretty good lately.  Tired, yes, but not in all that much pain and my brain has been working pretty well.  :) This morning though, I woke up with a fuzzy head and was sore from head to toe.  I tried to help my husband make some breakfast, but kept forgetting what I was doing, why I had opened the fridge, stuff like that.  I just did not feel right.  Went about the day and we even took the kids to the movies.  While we were there the sky opened up and it poured like it hasn’t all summer!  We’ve had a few good storms, but this one was the biggest.  Rain, wind, hail, thunder, lighting!  We were ducking in and out of stores at our outdoor mall while this was going on.  My hero of a husband braved the storm and went to get our big suburban “Bruce” as close to us as possible.  We all got soaked despite his efforts.
It was quite an adventure.

Once we got home and I sat down to rest (more like crash) I realized that my body had been trying to tell me this morning that it would storm today.  I think I am more in tune to my own body and symptoms now that I have been paying attention to and trying to improve them.  Here is an article from fibromyalgia-symptoms.org on Weather and Fibromyalgia, that explains why the weather effects us!

I really am a human barometer!

Next time, I will listen.

Symptoms - What's My Problem?

One of the first things I did when my Dr. suggested that I had fibromyalgia was to read.  (Really we all need to stay away from webmd don’t we, but it’s where I started.)  Other than a few commercials, and being familiar with a couple of people that lived with it, I didn’t know much.   From what I knew at the time, it didn’t sound like what I had.  Muscle pain was what kept coming up, and I didn’t THINK I had much muscle pain.  Aches and pains sure, but not the excruciating muscle pain that I had heard about.  The pain that was bothering me the most was joint pain in my legs, feet, knees and hips.  I found a list of symptoms and I couldn’t believe how much fit me!  Things I hadn’t even thought about as a problem, or things that didn’t seem to fit together, became clearer. 

From webmd:

Common symptoms of fibromyalgia -- also known as fibromyalgia syndrome or FMS -- may include:

Pain - yup

Anxiety - oh yes

Concentration and memory problems -- known as "fibro fog" – the worst!

Depression - yes

Fatigue – oh so much

Headaches  - sometimes

Irritable bowel syndrome - maybe

Morning stiffness – oh yes!

Painful menstrual cramps – getting worse by the month

Sleep problems - yes

Numbness, and tingling in hands, arms, feet, and legs - yes

Tender points – ouch!

Urinary symptoms, such as pain or frequency – no

After reading that I was sure the Dr. was right.  THIS is what my problem was.  There are more extensive lists out there which only confirmed for me what was going on.

Here is a long list at healingwell.com.

Take this Quiz to help you determine if this syndrome could fit you.

Just seeing lists like this helped me.   I wasn’t crazy, this was actually happening to me!  Then came the next step.  What do I do about it?

Introduction - Living in a Fog

We all have difficult things that we face in our lives.  Broken relationships, illness, death, poverty.  I have not had to walk a very hard path most of my life, but I have had struggles.  I have faced tough times and been brought through a few fires.  I have relied on my God to bring me through these things.  His grace is unmatched.  I would love to share my story with you and give a voice to what daily life is like living with fibromyalgia and fighting it!

My journey with fibromyalgia began in November of 2011.  After living with severe pain in my legs & feet for over a year, getting worse as time went on, my husband convinced me to see a Dr. and figure out what could be wrong.  I was tired all the time and felt like I was living in a fog.  Whatever was going on was really interfering with my life & my ability to be a parent & keeper of my home.

At the time, I was 33 and stay at home mom of a 13, 10 and 2 year old.  Every day I would wake up and feel like I’d been hit by a truck.  Everything hurt.  I felt swollen and achy from my feet to my fingertips, up to my neck, jaw and top it off with a headache some days.  My joints were the worst.  I could tell what kind of day it was going to be by how much it hurt to walk down the stairs.  On the bad days I felt like my bones would snap as I took one step at a time gripping the railing for dear life.  I would get kids off to school and then sit on the couch and try to wake up for around 2 hours, or go back to bed for a few hours depending on how late my 2 year old would sleep.  Once I actually felt awake around lunch time, I could usually get ONE thing done during the day.  One errand, clean One area of the house, One playdate.  It wasn’t good if I tried to do more.  I often pushed myself though.  Just get one more thing done, or run in the store really quick.  That always led straight to a crash.  I was always forgetting meetings, or phone calls to make, appointments, or some other household tasks, or cancelling plans because I just couldn’t leave the house.  I tried to play and engage with my 2 year old, but more often than not, I couldn’t do much.  I couldn’t even take him to the park.   Just the thought of that made me tired.

For me, when I say I feel “tired” that usually means that my entire body is SCREAMING at me to “Stop Stop Stop!!!  Sit down!  Rest!  You can’t go on!”  It’s an all-consuming feeling of being overwhelmed and exhausted.  My mind would fog over & I was done.  Out.

I don’t know how I made it through dinner time most days.  Usually around 4pm I would start to head downhill.  Just in time for the older kids to come home and need help with homework (that I couldn’t do because I couldn’t even think) or be driven to some activity. The pain in my legs was more than I could bear by that time of day.  My husband would come home from work and watch me as I literally cried just standing up & walking some nights.  Forget cleaning up dinner.  I would park myself on the couch after eating and there I would stay until bed time where I would become so stiff and sore it hurt to move.  I was exhausted, yet I would dread going to sleep because I knew how bad I was going to feel when I woke up.

This is how I lived for a year.  Feeling like a failure at life.  Ineffective for ministry.  Wondering if this was just “getting older.”   I was ready for answers.  I was ready to have my life back.  I had hope.  I know that God can heal.  I myself have experienced a miracle in emotional healing.  I just didn’t know how long my journey with this would be.  Would you like to walk out of the fog with me?