Art – De-Stress

I’m an artist.  I grew up drawing, painting and taking every single art class I could.  We even had a bus pull up to my elementary school that taught wood crafts and other fun things.

This is my very first oil painting from when I was in the 3^rd grade.  California Poppies.

I just love to create.  In fact, I feel it is a big part of my gifting from God.  After working as a graphic artist, I decided to go back to school for art.  My biggest problem was that I loved ALL types of art and it was really hard to pick what to study!  God has given me different types of art to do at different times in my life.  Currently, because I have a toddler and it’s really difficult to get paint out, or spend time in a ceramic’s studio, I am focusing on photography.

My husband gave me my first DSLR camera for Christmas when our 3^rd son was just a few months old.  It is one of the best gifts he has ever given me.  I LOVE it.  (Rings & a Kindle Fire are also up pretty high on the list)  I didn’t know then how much it would help me to have photography in my life, especially having fibromyalgia.  I had taken a few film photography classes in school, and I had a background in digital art, so I was comfortable making the switch to digital photography.  The first year I had the camera I spent lots of time learning, reading and practicing, but THEN I found an awesome web site.

www.365project.org

It is a place where photographers take and post a photo a day for a year.  I was in awe of the great photography on the site and it was something I wanted to learn how to do better, so I signed up!  It’s free.  January 1, 2011 I posted my first photo.  And I’m still posting!  I have had such a blast doing this project.  I take pictures of my kids, God’s creation around me and experiment with things I’ve never tried (like water drops and fizzy fruit!)  I am so grateful for the inspiration and encouragement the other photographers have given me.  The best part is, anyone can do this!  There are lots of people on the site that use regular ‘point and shoot’ cameras or smart phones.  It’s a great way to document your life, your pain, your joy, be creative every day, and help reduce stress from your life.

Not only do I post photos daily, but I have started selling my work.  I joined a local art group where I was able to put some of my photographs in local businesses for sale, I also set up a booth in my towns Art Walk once a month.  And I started an Etsy shop to sell online.

Creative Wave Studios

If you are a creative person, you NEED to find a way to use your creativity.  Find a hobby that you just love and make time for it!  If you love to write, journal, if you love to draw, doodle!  If you love to garden, or bake, do it!  I know what you are thinking, “this is just a waste of precious energy,” well no!  When you do something that you enjoy, something that stimulates your ‘right brain’, you will feel more energized and even be able to relax and think clearer.

Is there something that you used to do that brought you joy?  Or is there something that you have always wanted to try?  Why not start this week!  I pray it will make a difference in your stress and overall joy like it has for me.

Running – It’s What I Love

I quit running back in September 2011 because of the horrible pain I was experiencing at the time.  This was before I went to see my Dr. and learned I have fibromyalgia.  I was never a great runner, but I loved it.  I had only started a few years before and worked my way up to running a few 5K races with an ultimate goal of doing a ½ marathon someday.  The Tinkerbell ½ Marathon at Disneyland to be exact.  A lot of my pain in the beginning was joint pain, in my feet, knees and hips.  I was stiff in the mornings and so very sore in the evenings I could barely walk.  When I did see my Dr. in November, he confirmed that I should not be running.  Walking instead would be best.  But when I went to see a Rheumatologist for a 2^nd opinion she suggested that I continue to do what I loved, just start slow, build up very slow, pace myself, and listen to my body so I don’t overdo it.  It turned out a lot of my foot/leg pain was Plantar Fasciitis, and I was able to get that under control by learning some stretches and wearing good supportive shoes all the time (very hard for this flip-flop or barefoot girl!  Thanks to my sister-in-law who also deals with this, I was able to find some pretty cute supportive flip-flops by Orthaheel) It took me a few months to try running again.  I wanted to focus on healing my body a bit.

When I first began running I followed the Couch 2 5K Running Plan from coolrunning.  It is a very mild approach of walking/running and building up slowly to avoid injury over 9 weeks.  I loved the program, so I figured I would try it again.  It turned out that trying to run 3 days a week was too much, so I dropped it down to 2.  I have learned a lot about energy management, and for me, this is what I can handle.  I also believe the supplements I have been taking have helped with my energy and opened up more of my day to be able to exercise.  I have to run on days when I don’t have anything else going on, to give myself plenty of time to rest and recover.  Sometimes I have overdone it and suffered for a couple of days after with pain and fatigue.

This was one thing that was worth it to me to try and get back from my life before fibro.  I missed the quiet prayer time with just me and God (and usually my little one ridding in the stroller).  Getting out in nature (well, suburban nature) and feeling the sun on my skin.  It’s always been a great stress reliever for me, and given me a goal to work towards.  So once again I have set that goal of running the Tinkerbell ½ marathon someday.  Currently I am on week 7 of the C25K program although I have been running for 10 weeks now.  I feel great over all.  It has helped with energy, motivation, stress relief and more!

I want to point out that I am NOT telling you to go out and run.  This may not be right for you.  I also understand that I may not be able to do this forever.  You should seek advice from your Dr. about what type of exercise is best for you.  Start slow and build up slowly.  The normal recommendations for people with fibro are
low impact; walking, yoga and aqua therapy.  Even with those
you must build up slowly.

It takes time! 

What do you do for exercise?

Priorities - Where Does Fibromyalgia Fit?

It sure takes a lot of time and effort to revamp your life.  Lots of reading, studying, testing and practicing.  I feel sometimes like this is a new job.  I guess it is.  I have spent hours and hours reading, and talking with others who are living with fibromyalgia, trying to find what God leads me to put into practice in my own life as steps towards healing.  This can quickly take over your whole life,  putting God and family responsibilities on the back-burner!  I KNOW that is not what God wants for me, so where does getting healthy fit into my priorities?

Here is an illustration that shows the Circles of Priority for a Christian Adult according to
Bearing Fruit in God's Family by NavPress:

After talking about this with my husband we came up with the idea that for me, fibro should fall between “Work” (I should point out that "Work" does not necessarily mean a paying job) and “Other."  We’ll call it “Self/Health,” not “selfishness,”  but “Self/Health.”  This is the place to work on getting healthy.  My list for “Self/Health” would include; 

-reading/research on my illness

-healthy eating

-supplements

-exercise (which for me includes lots of prayer time & scripture meditation)

-Dr. appointments

-resting (which could lead back to God)

-blogging (which could also be helping others)

Maybe you would add massage, chiropractor or acupuncture.  Whatever you do that surrounds your illness and healing.  All of these are important and have a place on our priority list.   Here is my new visual which you can grab, print & customize with your own priorities:

 

Certainly there are times in people’s lives where health needs to be moved up on the list.  If you are hospitalized, or going through something like Cancer, your priorities may look different for a season.  When your illness has you so down (physically or emotionally) that you can no longer do the things on your priority list, that is a problem that needs to be addressed.  You should seek help to get things under control.

As I spoke about in a previous post, Job - Help for the Hurting, God allows things to happen in our lives for the purpose of bringing us closer to Him.  Don’t let anything get in the way of that relationship!

My point is this.  Let’s not let fibromyalgia (or whatever illness you have) take over our lives to the point where we are ineffective Christians.

Let’s put it in its place.

Job - Help for the Hurting

“so I have been allotted months of futility,

    and nights of misery have been assigned to me.

When I lie down I think, ‘How long before I get up?’

    The night drags on, and I toss and turn until dawn.”  Job 7:3-4

“And now my life ebbs away;

    days of suffering grip me.

Night pierces my bones;

    my gnawing pains never rest.”  Job 30:16-17

Sound familiar?  Researching the history of fibromyalgia you will often find references to Job possibly being the first recorded sufferer.  I hadn’t heard anything about this before I began investigating this syndrome, and I have studied the book of Job a few times.

Most commentators agree that Job is the oldest book in the Bible, possibly written soon after the flood of Noah, many years before Moses penned the Torah (first 5 books of the Bible).  Job was a righteous and wealthy man.  Satan approached God with a challenge, that when all good things were taken away from him, Job would blame God and turn from Him.  Satan is given approval to prove his theory and all of Job’s wealth is taken away, his ten adult children are killed and he is afflicted with illness.  Why does God allow us to suffer?  Three of Job’s friends show up to try and make sense of what was happening to this Godly man.  Job never wavers in his faith and worship of God.  Then, the Creator and Sustainer of the universe speaks to Job about who He is.  A Living, Loving, Personal God, active in all facets of His creation.  Job is found to have passed this test and God blesses him, giving him twice as much as he had before.  More wealth, more children, and although the text doesn’t mention his health, the fact that people once again were not afraid to be around him, and the fact that he lived happily for 140 years after these events, leads me to believe he was healed.

As I read more of Job’s own description of his afflictions and looked back to the beginning of the story,   “So Satan went out from the presence of the Lord and afflicted Job with painful sores from the soles of his feet to the crown of his head.”  Job 2:7, I can’t help but doubt that fibromyalgia is what was ailing him.  In my opinion whatever it was, was horrible and included open sores (boils) that would explain his physical torture.  However, even if Job didn’t suffer from fibromyalgia, those of us that live with pain can turn to this book for comfort, answers and hope.

“There is great news to those who have lost possessions, for those who have lost position and for those who have lost health.  God is near, God is in Love with you and God is in control.  It is a huge challenge, but the truth is that the God who directs each and every lightning bolt is in control of the situation.  Nothing that has happened in a life, as tragic as it is, is a surprise to God, nor was it beyond His capability to stop it.  The good news is that God is so capable that He can not only manage, but also direct the life of each individual in such a way that measured in the eternal scheme of things, a perfect plan unfolds that is best for the person and brings glory to God.  The life of the hurting is in the powerful and loving hand of the Creator and has His laser focus and undivided attention.” (193-194) God’s Science Quiz, Dr. Gary Sutliff.

I invite you to study The Book of Job for yourself and pray that you find comfort in it as I have.

For further study into the science in Job, you can pick up my Dad’s book on the subject!

God's Science Quiz.  

And watch this video by Chuck Missler - 
God's Science Quiz to Job.

Stormy days – Am I a Human Barometer?

Something I have read about, and heard from others, is that weather really affects their fibromyalgia.  Up until recently I’ve been pretty confused about my symptoms and what is going on with me, but it seemed like the weather really didn’t bother me much.  I live in AZ where it is very dry most of the year.  But every summer, mid-July, we get hit with monsoons.  The humidity literally goes from 0 – 60 in a matter of days.  It’s lovely to have summer storms in the desert.  Pouring rain, lighting shows and the most beautiful sunsets you’ve ever seen!

 I’ve been feeling pretty good lately.  Tired, yes, but not in all that much pain and my brain has been working pretty well.  :) This morning though, I woke up with a fuzzy head and was sore from head to toe.  I tried to help my husband make some breakfast, but kept forgetting what I was doing, why I had opened the fridge, stuff like that.  I just did not feel right.  Went about the day and we even took the kids to the movies.  While we were there the sky opened up and it poured like it hasn’t all summer!  We’ve had a few good storms, but this one was the biggest.  Rain, wind, hail, thunder, lighting!  We were ducking in and out of stores at our outdoor mall while this was going on.  My hero of a husband braved the storm and went to get our big suburban “Bruce” as close to us as possible.  We all got soaked despite his efforts.
It was quite an adventure.

Once we got home and I sat down to rest (more like crash) I realized that my body had been trying to tell me this morning that it would storm today.  I think I am more in tune to my own body and symptoms now that I have been paying attention to and trying to improve them.  Here is an article from fibromyalgia-symptoms.org on Weather and Fibromyalgia, that explains why the weather effects us!

I really am a human barometer!

Next time, I will listen.

Good Read – Educate Me!

I love to read and I’m really picky about what I spend my time on.  I don’t trust just anything, so it was hard for me to choose my first book about fibromyalgia.  I searched, asked in groups, read reviews, and settled on Figuring out Fibromyalgia by Ginevra Liptan M.D.

I bought it on my Kindle from Amazon for $9.99 so I could start reading right away & was very happy with my choice.  Dr. Liptan developed fibromyalgia herself while she was in medical school and has spent her time in practice with fibro patients.

She is the Medical Director of “The Frida Center” in Oregon, where they treat and educate about fibromyalgia.  So I felt like I could believe her.

I like that the book has very current information, published in April 2011.  I also appreciate how fibro is explained.  I really had no knowledge as to what was happening to my body and this book helped educate me to where I can now even explain it to others.  It made perfect sense!  Not only does Dr. Liptan explain the syndrome, but she talks about causes, and then treatment.  The treatments suggested aren’t just “take this prescription”, but really talk about healing your body.  Just what I was hoping for!  Direction!

The 5 main treatments recommended are:

diet

exercise

sleep

manual therapy (myofascial massage)

reducing the “fight or flight response” (stress)

She also reviews treatments such as supplements and prescriptions, and includes a chapter on alternative treatments that may or may not be worth your time/money (cleansing & detoxifying, acupuncture, magnets, microcurrent therapy, cold laser therapy, bodywork, vitamins, minerals, supplements, hormones, etc.).

I haven’t taken all of the advice, some things are expensive and seemed out of reach (like specific food allergy blood testing), but for me it was a place to start.  I know that God is leading me to become a healthier person and treat my body better.  "Let us cleanse ourselves from everything that can defile our body or spirit. And let us work toward complete holiness because we fear God."  2 Corinthians 7:1 NLT.  This book is a great guide.  I started by deciding to focus on the 5 main treatments and add the few supplements she suggested.  I dedicated a week for each one and read and studied and practiced.  I’m not there yet, after 6 months I’m still working at it (diet has been tricky and to be honest I haven't done anything with Myofascial massage), but I can tell you I have had a GREAT improvement in my symptoms.  I have gone from living every day in pain and in a fog, to having good days and bad days and have a greater understanding of what is going on inside.

I HIGHLY recommend this book for anyone who has fibromyalgia, or wants to understand it better.

Get it.

Read it.

Do it!

Introduction - Living in a Fog

We all have difficult things that we face in our lives.  Broken relationships, illness, death, poverty.  I have not had to walk a very hard path most of my life, but I have had struggles.  I have faced tough times and been brought through a few fires.  I have relied on my God to bring me through these things.  His grace is unmatched.  I would love to share my story with you and give a voice to what daily life is like living with fibromyalgia and fighting it!

My journey with fibromyalgia began in November of 2011.  After living with severe pain in my legs & feet for over a year, getting worse as time went on, my husband convinced me to see a Dr. and figure out what could be wrong.  I was tired all the time and felt like I was living in a fog.  Whatever was going on was really interfering with my life & my ability to be a parent & keeper of my home.

At the time, I was 33 and stay at home mom of a 13, 10 and 2 year old.  Every day I would wake up and feel like I’d been hit by a truck.  Everything hurt.  I felt swollen and achy from my feet to my fingertips, up to my neck, jaw and top it off with a headache some days.  My joints were the worst.  I could tell what kind of day it was going to be by how much it hurt to walk down the stairs.  On the bad days I felt like my bones would snap as I took one step at a time gripping the railing for dear life.  I would get kids off to school and then sit on the couch and try to wake up for around 2 hours, or go back to bed for a few hours depending on how late my 2 year old would sleep.  Once I actually felt awake around lunch time, I could usually get ONE thing done during the day.  One errand, clean One area of the house, One playdate.  It wasn’t good if I tried to do more.  I often pushed myself though.  Just get one more thing done, or run in the store really quick.  That always led straight to a crash.  I was always forgetting meetings, or phone calls to make, appointments, or some other household tasks, or cancelling plans because I just couldn’t leave the house.  I tried to play and engage with my 2 year old, but more often than not, I couldn’t do much.  I couldn’t even take him to the park.   Just the thought of that made me tired.

For me, when I say I feel “tired” that usually means that my entire body is SCREAMING at me to “Stop Stop Stop!!!  Sit down!  Rest!  You can’t go on!”  It’s an all-consuming feeling of being overwhelmed and exhausted.  My mind would fog over & I was done.  Out.

I don’t know how I made it through dinner time most days.  Usually around 4pm I would start to head downhill.  Just in time for the older kids to come home and need help with homework (that I couldn’t do because I couldn’t even think) or be driven to some activity. The pain in my legs was more than I could bear by that time of day.  My husband would come home from work and watch me as I literally cried just standing up & walking some nights.  Forget cleaning up dinner.  I would park myself on the couch after eating and there I would stay until bed time where I would become so stiff and sore it hurt to move.  I was exhausted, yet I would dread going to sleep because I knew how bad I was going to feel when I woke up.

This is how I lived for a year.  Feeling like a failure at life.  Ineffective for ministry.  Wondering if this was just “getting older.”   I was ready for answers.  I was ready to have my life back.  I had hope.  I know that God can heal.  I myself have experienced a miracle in emotional healing.  I just didn’t know how long my journey with this would be.  Would you like to walk out of the fog with me?